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Achieving justice in genomic translation re-thinking the pathway to benefit /

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Dettagli Bibliografici
Ente Autore: ebrary, Inc
Altri autori: Burke, Wylie
Natura: Elettronico eBook
Lingua:inglese
Pubblicazione: Oxford ; New York : Oxford University Press, 2011.
Soggetti:
Human genetics > Research > Moral and ethical aspects.
Genomics > Research > Moral and ethical aspects.
Genetic screening > Moral and ethical aspects.
Electronic books.
Accesso online:An electronic book accessible through the World Wide Web; click to view
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Sommario:
  • Achieving justice in genomic translation: re-thinking the pathway to benefit / Sara Goering, Suzanne Holland, and Kelly A. Edwards
  • The social, political, and economic underpinnings of biomedical research and development: a formidable status quo / Patricia Kuszler
  • The input-output problem: whose DNA do we study, and why does it matter? / Stephanie Malia Fullerton
  • The autism genetic resource exchange: changing pace, priorities, and roles in discovery science / Holly K. Tabor and Martine Lapp. Commentary on the discovery phase of research / Sara Goering, Suzanne Holland, and Kelly A. Edwards
  • Early assessment of translational opportunities / Patricia Deverka and David L. Veenstra
  • The power of knowledge: how carrier and prenatal screening altered the clinical goals of genetic testing / Nancy Press ... [et al.]. Commentary on the development phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards
  • Integrating genetic tests into clinical practice: the role of guidelines / Anne-Marie Laberge and Wylie Burke
  • Genomics and the health commons / Nora Henrikson and Wylie Burke
  • Commentary on the delivery phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards
  • The role of advocacy in newborn screening / Catharine Riley and Carolyn Watts
  • What outcomes? whose benefits? / Wylie Burke and Nancy Press. Commentary on the outcomes phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards
  • Bringing the best science to bear on youth suicide: why community perspectives matter / Rosalina James and Helene Starks.

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