Achieving justice in genomic translation re-thinking the pathway to benefit /
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| Other Authors: | |
| Format: | Electronic eBook |
| Language: | English |
| Published: |
Oxford ; New York :
Oxford University Press,
2011.
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| Subjects: | |
| Online Access: | An electronic book accessible through the World Wide Web; click to view |
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| 008 | 110316s2011 enk sb 001 0 eng d | ||
| 010 | |z 2011011621 | ||
| 020 | |z 9780195390384 (hardback alk. paper) | ||
| 020 | |z 9780199909742 (e-book) | ||
| 035 | |a (CaPaEBR)ebr10520364 | ||
| 035 | |a (OCoLC)774293836 | ||
| 040 | |a CaPaEBR |c CaPaEBR | ||
| 050 | 1 | 4 | |a QH438.7 |b .A26 2011eb |
| 082 | 0 | 4 | |a 174.2/96042 |2 22 |
| 245 | 0 | 0 | |a Achieving justice in genomic translation |h [electronic resource] : |b re-thinking the pathway to benefit / |c edited by Wylie Burke ... [et al.]. |
| 260 | |a Oxford ; |a New York : |b Oxford University Press, |c 2011. | ||
| 300 | |a x, 212 p. | ||
| 504 | |a Includes bibliographical references and index. | ||
| 505 | 0 | |a Achieving justice in genomic translation: re-thinking the pathway to benefit / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The social, political, and economic underpinnings of biomedical research and development: a formidable status quo / Patricia Kuszler -- The input-output problem: whose DNA do we study, and why does it matter? / Stephanie Malia Fullerton -- The autism genetic resource exchange: changing pace, priorities, and roles in discovery science / Holly K. Tabor and Martine Lapp. Commentary on the discovery phase of research / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Early assessment of translational opportunities / Patricia Deverka and David L. Veenstra -- The power of knowledge: how carrier and prenatal screening altered the clinical goals of genetic testing / Nancy Press ... [et al.]. Commentary on the development phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Integrating genetic tests into clinical practice: the role of guidelines / Anne-Marie Laberge and Wylie Burke -- Genomics and the health commons / Nora Henrikson and Wylie Burke -- Commentary on the delivery phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- The role of advocacy in newborn screening / Catharine Riley and Carolyn Watts -- What outcomes? whose benefits? / Wylie Burke and Nancy Press. Commentary on the outcomes phase of the translational cycle / Sara Goering, Suzanne Holland, and Kelly A. Edwards -- Bringing the best science to bear on youth suicide: why community perspectives matter / Rosalina James and Helene Starks. | |
| 533 | |a Electronic reproduction. |b Palo Alto, Calif. : |c ebrary, |d 2012. |n Available via World Wide Web. |n Access may be limited to ebrary affiliated libraries. | ||
| 650 | 0 | |a Human genetics |x Research |x Moral and ethical aspects. | |
| 650 | 0 | |a Genomics |x Research |x Moral and ethical aspects. | |
| 650 | 0 | |a Genetic screening |x Moral and ethical aspects. | |
| 655 | 7 | |a Electronic books. |2 local | |
| 700 | 1 | |a Burke, Wylie. | |
| 710 | 2 | |a ebrary, Inc. | |
| 856 | 4 | 0 | |u http://site.ebrary.com/lib/daystar/Doc?id=10520364 |z An electronic book accessible through the World Wide Web; click to view |
| 908 | |a 170314 | ||
| 942 | 0 | 0 | |c EB |
| 999 | |c 133010 |d 133010 | ||